Dr Hermann, the pediatric surgeon, ordered an MRI and later a CAT scan for Dorian's growing lump issue. When we arrived to Medical City we couldn't do the MRI because the anesthesiologist (Dr. Kampine) told us Dori was too high of a risk to intubate & sedate during the procedure due to his major heart problems and constricted airways, so we did a CAT scan instead.
We could only get one shot at keeping him perfectly still for the images to capture. After going through ALL the verses of "Wheels on the Bus" and "Head, Shoulders, Knees and Toes" Chris and I were able to keep him entertained enough to do it without any setbacks.
Through the CAT scan Dr. Hermann found Dorian has abnormalities in his bone structure in his skull, a hole in his skull that is letting brain matter &/or cerebral fluid pop out of the hole. He told us this is beyond his expertise so now he has referred us onto a pediatric neurologist who can take a look at Dori's head and figure out what next steps should be (Dr. Sacco).
The good thing, Dori doesn't act like it hurts when you touch it so he's not in pain, but it may be causing him headaches from that pressure point. The anesthesiologist and his colleague (another doc he called in on her day off) were very candid about the permanent risks of putting Dori to sleep, and the possibility of cardiac failure if intubated through his narrow airways. Dr. Kampine is hands down the best pediatric anesthesiologist in Dallas... coming from a dad who literally wrote the book on anesthesiology (his doctor dad was a professor in med school to aspiring anesthesiologists) so we fully trust his concerns. Hopefully we'll get into see the neuro guy asap, don't know how far out since these guys calendars get booked pretty far out.
Just like in any profession, you are going to encounter people that are really "good" at what they do and people who are just average. We've been very best to be connected to very very good doctors throughout this process so that makes things alot easier when you have full confidence in their medical opinion.
Ben and Alex have been entertaining the babies much to their delight. Dori laughs out loud with Ben's antics, and Wynnie flaps his arms and kicks alot when Alex comes over to play. Wynnie figured out that as long as he doesn't cry, he can hang out as long as he wants to in our bed while they watch cartoons.
Just 3 short days til the babies turn 2 years old!! We are so proud of them!