Saturday, June 6, 2009

Summer Vacation and June updates

Dorian and Mami waiting for big bro's to finish the big roller coasters

Ben and Alex cozied up and feeding the dolphins at Sea World.

The Shamu show at Sea World was so beautiful it made me cry!!  Check out the two whales in the background.  Just breathtaking!!  It even made Wynn drool he was so mesmerized!  
Wynn in his old lady sun hat while big brothers continued the roller coasters at Sea World. 

This first week of June has been a busy one.  Ben and Alex's football team won the city championship as we predicted.  It was an action packed game that went into overtime.  They had alot of fun. 

Then the next day we headed to San Antonio for our family vacation.  Ben and Alex had a great time enjoying the roller coaster rides at Six Flags Fiesta Texas, seeing all the beautiful animals at Sea World, and playing with their cousins.  They even got to hand feed the dolphins!  We quickly learned that the babies do not enjoy riding in the car for more than 20 or 30 minutes.  They cried for 4.5 on the way to San Antonio and cried 4.5 hours on the way back home (nonstop. literally!) .  So Chris and I are certain that no trips up north to Kansas/Missouri/Nebraska will be in our immediate future since it was torture on the poor little guys and 6 or 9 hours of nonstop crying isn't good for them and it certainly isn't pleasant for us either.  

Preschool is officially over for Ben and Alex so their first week of summer vacation was a good one.  Lots of playing with toys, swimming at the pool and going to the park.  They also went with us to Scottish Rite Hospital for the first time for Dorian and Wynn's hand clinic check up.  We are laying the groundwork about slowly exposing them to Dorian and Wynn's health issues, so we prepped them on the way to the visit by saying "All kids are not the same.  Some kids bodies are made different.  They may be in a wheelchair, or not be able to use their arms, but they are just like you-- they like to play and laugh."  So before we parked our car I warned them "You might see kids in wheelchairs, or kids that walk kinda funny, but remember they are just like you."  It hadn't been 2 minutes that we were inside and a little girl was in a wheelchair with her head in a device that held it up by ropes and a chin guard.  Alex points to her with a big smile and said "Look mami, just like you said!!"  I quickly looked at Chris and luckily the little girl was sitting in front of a big fish tank so I responded "yeah!  I told you there were tons of cool fish here!"  Situation diffused!  Babies had their hands examined and their hand splints have been doing a good job of helping extend their thumbs.  Dorian needs more stretching done to continue to loosen up his stiffness in his hands but he has improved a great deal since the beginning.  Wynn's hands are doing great and I'm not even sure if he needs the hand splints anymore.  

The ophthalmologist office visit went well.  After getting their eyes dilated and cornea's checked, there was minimal clouding so that is good news.  Dorian will start wearing a patch on his eyes a few hours a day to help with his crossed eyes.  I thought it would be like a pirate patch, but it's not.  It's just like a eye shaped band-aid.  So no arrrrgh's please.   :)

The visit with the cardiologist gave us a little reality check.  Both babies were placed on heart medications after getting their ekg's.  Dorian has "mitral valve insufficiency" which is when the valve between the upper left chamber of the heart (atrium) and the lower left chamber (ventricle) does not close well enough to prevent back flow of blood when the ventricle contracts.  Wynn in contrast has "aortic valve insufficiency" which is when the aortic valve becomes leaky, causing blood to flow backwards into the left ventricle.  They both have mild versions of these conditions so it's good that it was caught early and that we're able to intervene medically instead of anything invasive like surgery.  

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