Monday, October 27, 2014

Expectancy vs Expectations

Happy Happy Birthday to the sweetest, happiest and cuddliest little boys on the planet!!!  We are so grateful to celebrate Dorian and Wynn's 6th birthday!  Wynnie was so excited that it's his birthday today that he didn't sleep a single wink last night (I'm attributing it to his zeal for his birthday, not the fact that he is finishing out his steroid course of therapy that makes him wide awake for days).  Dorian has been singing happy birthday to himself all weekend so today is just another day where he thinks everything is awesome.

Wow.... six is A BIG deal!  When they were first born we were told they would have an average life expectancy of 4-8 years.  We had no idea what to expect when faced with the news we had 2 terminally ill children that God had entrusted to our care.  By all means and measures, Dorian and Wynn have blown all expectations out of the water and continue to surpass any expectations we could have ever had for them.  Life EXPECTANCY is very different from our EXPECTATIONS.  Expectancy is based on numbers.  Expectations are based on hope.  Dorian and Wynn have always given us hope through their smiles, laughs, snuggles and love.  Even in their worse days, they have always managed to show us their warrior spirit.  We are so proud of all the lives they have touched and all the people their bravery has inspired.

Since their grandparents come into town later this week we'll be having a "My Little Prince" themed party for them.  Royalty, not rhythmic curly haired short guy, but (note to future self) a Purple Rain theme would totally be right up Dori's alley as well.

We "adults" had a great time at our annual Halloween Spooktacular -- we had our biggest turnout ever and look forward to sending all the donations over to the National MPS Society.  Dorian and Wynn get recognition for all the money they help raise for the National MPS Society for ML2 research so we love showing them their names in their newsletter and all the thank you cards they receive.  They are hard working little fellas!!

Two weekends ago we went to Chicago ... I had a business trip out there and then Chris, Ben and Alex met me out there for the Husker/Northwestern game.  The boys LOVED Chicago and we had a blast with them!

We're looking forward to having a great week celebrating Dori and Wynnie... thanks for all that continue to follow us and we challenge you to do SIX fun things this week in honor of Dori and Wynnie. Woo hoo!!!!

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