Tuesday, December 2, 2014

Being Prayerful

"Don’t worry about anything; instead, pray about everything. Tell God what you need, and thank him for all he has done. Then you will experience God’s peace, which exceeds anything we can understand. His peace will guard your hearts and minds as you live in Christ Jesus." -Philippians 4:6-7

Thanksgiving was a hit as we hosted "Friendsgiving" with our friends the Caracalas family down the street.  Dori had a fun time entertaining the adults and Wynnie had special bonding time with Ty and his mama while they snuggled with him on the floor.  Chris did a fantastic job making TWO turkeys (one smoked, one oven baked) and a baked ham.  The kids all had fun playing around all day together.  Chris's baby project of finishing up our home bar finally was "unveiled" at Thanksgiving so we decided to "break it in" and we did a very good job at that. 

Over the past couple of weeks Wynnie has been working real hard at breathing.  He has lost a little bit of weight and now requires being on his bipap mask 24 hours a day in order to maintain his O2 levels as high as he can make it go.  He gets it off quickly for baths and feeding but he has decided to not fall victim to holiday weight gain so he's been eating a little less and snuggling a lot more.  So we have to be more "efficient" at his feedings to keep his belly happy.  

Our doctors, nurses and hospice agency have been wonderful at accommodating medication changes, medical equipment requests and respite.  They have bee open to our suggestions from stuff we find on Google (how did we ever survive before GOOGLE?!?).  Thankfully our doctors and hospice agency have been willing to dig deep in their "bag of tricks" to help open up his lungs in keeping our concerns and parameters in mind.  "Team Wynnie" is in full force and instead of worrying, we are focusing our energy on ensuring he feels loved and safe and being prayerful that he continues to turn the corner in the right direction over the next week or so. On occasion we have been giving him morphine and lorazapram (sp?) to help with any pain or anxiety he might be feeling.  I wish they'd make automatic "mommy and me" prescriptions of those narcotics so I could take a shot when Wynnie takes some too ala Karen Walker on Will and Grace.  (Bad joke, I know.) 

In the meantime, thanks to all our friends and neighbors who have come over and hung out with us to watch football, hosted Ben and Alex over for playdates and sleepovers, and have done fun things with Chris and I on adult nights out.  We are so THANKFUL to keep things as normal as possible for ALL our boys and (for our own sanity) keep things normal for us as Wynnie's parents. As long as Wynnie feels comfortable and feels our faith in him and our love for him, we hope that a loving and positive environment will foster an environment for healing.   

We all took turns watching Wynnie while the tree and Christmas lights went up on Friday and Saturday after Thanksgiving.  While hanging ornaments I could hear Ben in the other room with Wynnie.  It sounded like he was at a swimming championship competition.  I could hear Ben saying "come on Wynnie... you can do it!  Breathe harder.. get those numbers up!"  And when he'd lean in to give him a kiss Wynnie would bump up a couple of numbers and Ben would cheer and would run into the other room and say "I'm helping Wynnie get his numbers up!"  He's a coach at heart just like his Papi I suppose, it's been very cute.  

Thanks for keeping Team Wynnie in your prayers as we continue to cheer him on.  My mom always used to sing that song "Don't Worry Be Happy" when she would do housework and I find myself singing that to Wynnie too.  We'll keep being prayerful, positive and united for Team Wynnie.  I hope Wynnie understands how important of a warrior he is and how loved he is by so many people.  Go Wynnie!!  Good job buckey!!! 
Flashback Tuesday! :) I found this from June 2013.  Isn't he handsome!  

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